I just finished a week of long-hauler syndrome. Again. It seems my new normal is one week out of the month I will be feeling exactly as I did with Covid. It’s horrible. The unending fatigue. Fever. Coughing and breathing treatments. But am I complaining? Well, yes. Do you know me? But seriously I’ll take that over OU Boy’s weird after effects. Blood Clots are not on my bucket list. At least I am off the steroids now and not biting any heads off.
After cruising through December and January in shorts, February is coming in cold. It started as a small shower that froze and people lost their minds. There were 30 car pile-ups on the interstates. Dead cows on the highway and people in no way prepared for this. Today we have cold again. 19 degrees. Plus little snow flurries now and again.
I have been hibernating and dealing with Covid. Deaths of our grandmothers. Deaths of friends and the unmitagated gall of Texans refusing to wear masks in the Marriott. Marriott is very good about standing by their employees however so now you can’t get in without a mask. Can’t. Open. The. Door. One of our residents who was recovering away from his house from Covid is now back in hospital with liver failure and gall bladder surgery. This is not something to take lightly.
Coming up on the anniversary of The Eye thing. 5 years. 4 years today since the first surgery. Still have 12 stitches in there. Not too worried about them. My eye feels great and although it hurt to give up the contacts, I’d rather keep the eye.
Between reading and watching The Magicians again, we are pretty content. I made a huge crock of Irish Stew this morning and it is simmering in the oven beside a loaf of whole grain bread I made.I figured out that baking heats up the house.
So Sunday is Valentine’s Day. But not in our house. Every husband and child was born on that day so it’s not my day. We made reservations at the Tea Room for the Valentine Chocolate High Tea on Monday. We love that.
Everyone still hanging in there? I sure hope so. Stay warm and safe and be nice. Seriously.
Okay, so it’s Twitter Jail. Or as he calls it Twitmo. He is addicted to Twitter. So when he woke up yesterday to discover he was in jail for 7 days, I couldn’t’ believe it. I mean I’ve been told to take a post down before, but never been in lockdown before. Donald Trump blocked me.
I tell you he was like an addict having withdrawals. He can see everything but he can’t comment or retweet. Finally I broke down and explained to him that if you are going to be spouting off about how Rand Paul’s neighbor should have kicked his butt all the way down the street, well you are going to get punished. But the seven day thing had me stumped. Normally it’s about 24 hours. Then I find out it is not his first violation.
So now he knows about shadow accounts and that you need to have one if you can’t control your mouth. Shadow accounts are a different account in a different name. I personally have a few. Two are private. So, now he is happy again and taking the orange thing in the people’s house to task for endangering lives. Once again there is peace in the kingdom.
As for me, I had two stitches removed this week from the eye. Only 10 left! My corneal surgeon says my transplant is beautiful but I’m not producing enough tears. She gave me a prescription for Restasis eye drops. I called my sister who has been through this 5 times and she said, “NO! Doesn’t she know you have Crohn’s? I was on that and all I did was sit in the bathroom in pain!” Then my trusty pharmacist called and said it was $635 after insurance. So they called in a different one. New. Only available at one independent pharmacy that doesn’t take insurance and it is $748. Side effects? Burning, redness and swelling of the eye. Nope.
Did some research and am upping my intake of Omega 3 which helps a lot with tear production and using warm compresses. Spoke to my pharmacist and she said I was doing the right thing. I knew my body better than anyone. So here we are back on a schedule of drops every other hour. Anti-rejection drops, pressure drops and antibiotic drops along with the new Syolane drops that we all agree are great.
Now I’m off to do nothing because for two weeks I can’t bend, lift or rub. Another surgery down and more to go but the great news is after the stitches came out my vision was 20/30! Guess I’ll stop whining about it.
It’s been a minute since we talked. Here we are in March already and it was 80 degrees yesterday! As the usual Spring allergies kick in, the eyeball situation kicks up!
This June will be three years of eye surgeries and transplant issues. I still have 12 stitches in my left eye. I guess because it doesn’t look different from my other eye, people think it’s fine. One of those people would be me. I dropped the ball on being vigilant and yesterday was a wake up call!
I have checked in hundreds of times now. They know me. But yesterday there was a twist. The receptionist was wearing a black mask. She said she had four questions for me. The first: Have you had a fever in the last two weeks.Me: Yes. Her: You need to go to that room over there and wait for a doctor to come. Okay… I quickly sent OU Boy a text telling him about it. He called and I was a bit weepy and concerned. Little did I know then that this would become an event!
Dr. M came in and asked me what was up. I told him I was coming off of a two week Crohn’s flare and had run a low-grade fever. He cleared me but suggested they put me in the back so I didn’t get any cooties from out front.
Meanwhile, OU Boy is racing across town to the Dean Magee Eye Institute and losing his mind. All he and his GM saw was Crohn’s. They thought it was Corona and apparently when he rushed in to say in a loud voice, “Where is my wife, they said she is in quarantine!” people cleared out like they had heard there was toilet paper available at Target!
The confusion was cleared up. Or so we thought. More on that. The visit was not successful. My eye pressure was 30. Not good. I have a small abrasion on my transplant. Now I am back to 5 different drops and one salve. Every hour. EVERY hour. I was in tears thinking I’m not going to leave the country when my doctor said if it’s down in a week she’d prefer I left the country. She had just returned from Curacao and said I’d be safer from health threats there. So yeah.
Apparently, our GM called them to ask if he should be in quarantine. Oh lord, we laughed. Especially since his wife graduates from Med School this summer. So no I don’t have the C virus. I still have to self isolate however due to my having a transplant and Crohn’s but I’m good with that. I’ve got books on that TBR list that are about to be read!
Stay Safe!! Wash Your Hands! And if you can’t find Purell, Use 2/3 cup of 91% alcohol, 1/3 cup of aloe gel and some tea tree oil to make your own.
With a moving forward by President Jimmy Carter, this is the story of how Habitat for Humanity began. Telling inspiring stories of the many people impacted by the program who then go on to live the seven virtues which Reckford puts forward, one at a time.
Beginning with the easiest virtue, kindness. Sometimes we don’t see the ‘reward’ of a kind act. Because the reward is a kind act. Kindness can be a chain reaction that leads to Community, Empowerment, Joy, Respect, Generosity, and Service. It’s rather inspiring to read the stories of people whose lives were touched by a kind act, which empowered them to act and pass it forward and succeed.
President Carter has set the bar for humanitarian works. In his 90’s he is still building, spreading kindness and being of service to people here and abroad. Giving people hope and setting an example.
He has always been a special man. My father campaigned for him and he was the first President I voted for. Fellow Georgian. His family has always been dedicated to service. I really loved Reckford’s own story and the people he interacted with. What an inspiration they all were. My husband and I have worked on a few homes for Habitat and it was the most rewarding thing we have ever done.
I hope with this book everyone will find common ground and agree on what path we need to be following. Now I’m grabbing a hammer and helping my neighbor repair her fence. What are you going to do?
NetGalley/ October 8th, 2019 by St. Martin’s Essentials
A mother and her three daughters live totally off the grid in the Stillwater forest. A place no one wants to go. The girls, Wren, Sage and Evie know nothing beyond their own one room cabin and the mysterious supply man who their mother meets in the forest. The world is dark and dangerous they are told.
When Evie gets sick her mother leaves with to get help. They never return. Months go by and Wren is sure they will die and then a mysterious man shows up asking questions and the girls take a chance and escape into the forest. What they will find on the other side will rock their lives.
The story is told from multiple view points and I was hooked from the first chapter! The author has a very engaging style and I was reading as fast as I could to see what happened. And at the end is when it all fell apart for me. It was so disappointing. I can suspend belief on a lot of things but this was just so real and raw and gritty up until the end that when the end came I couldn’t make it sync with the rest of the book.
It’s a long week-end here in the States. Labor Day signals the beginning of school and the end of summer. No one has told Mother Nature about that as we are still heading for the high 90’s today.
I’m reading A Killing by The Sea by Kathleen Bridges right now. The mafia meets the Illuminati. Today I’m taking a break and enjoying the pool and doing nothing. I am so thankful that this year I finally was able to go outside and do outside activities. For the past 2 summers I’ve been inside due to multiple eye surgeries and a transplant, so this was big for me and I am so thankful.
I wish you all a safe and happy last fling with Summer!
Good Morning! Home from the hospital and snuggled up with a lot of books!
The surgery on Monday was a Scleral Fixation of a Four-Haptic Intraocular Lens Using Gore-Tex Suture. Which basically means since the usual way wasn’t an option for me, they made tiny incisions in the white part and threaded a basket with a lens in it. Yep it is gross. It looks gross. But I now have a lens. For two years now I have not. Just procedure after procedure. All from a bad contact lens. Fresh out of the box.
Dr. Davis said I look great for 24 hours out of surgery. I’m still not over the anesthesia. That was bad. My throat is still sore from the intubation tube and I threw up for a straight 24 hours, but I think my head has cleared and now we shall go back to 4 different drops every 4 hours.
So I’m reading rather slowly. The good thing is the postman brought books!!
I’m taking this week to recover but will be checking in on you all!
The saying above is so very true. Life is a series of thousands of tiny miracles. And we should be noticing them. Being mindful, being engaged with the moment you are in and not thinking ahead to what’s next.
June 28 was a year since I woke up with a corneal ulcer and totally blind in one eye. When we finally got it uninfected, I had to wait while the thing healed. Then the end of February I had surgery to remove the scarring and the cornea and have a transplant.
2 months ago I had 2 stitches taken out. I didn’t see or feel anything then. Yesterday I spent hours with different cameras taking pictures of the little fellow clinging to my eyeball and the 14 stitches left holding it in place. And then my surgeon took one more out. This time I saw all of the equipment and I was amazed how tiny scissors and a needle can be! I’m progressing very well. My vision in that eye is still wonky but improves a few days after these stitch removals. Not as in good enough to drive or anything like that, but it’s improving. Now we shall start removing them every 6 weeks and then I’ll have another surgery.
My surgeon asked me what this past year has been like for me. Scary, full of anxiety, a lot of whining and moaning dramatically. But I also don’t rely on my sight completely anymore. My sense of smell and awareness of the things around me are heightened. I am extremely mindful of every thing I do. What the people around me are doing. I do one thing at a time. I let people help me. Pride has gone who knows where.
While my husband has to leave the room for every procedure as he is squeamish, my doctor and I do a lot of talking. About books, tea, especially tea. And yesterday he said,” You know through this whole thing, you’ve never complained to me. Never said no to me. You sit still as a statue and let us hurt you and learn from you and you never say a word. How do you do that?” Me: “I trust you”. And that is the truth. I trust this man who is the best in his field. It’s just that simple. I trust him and the gratitude I feel for him and his residents is enormous. I have had tiny miracles every step of the way. When things should have gone bad from the beginning, they didn’t. When I had no idea how I was going to come up with $30,000.00 up front for the surgery, it just showed up in my mailbox the day before Christmas Eve.
Today will be a rather uncomfortable day but that’s to be expected. I’ll still be able to read because I have one good eye. And that’s more than some people have. Notice the tiny miracles around you. Seek them out. Make them happen.
Thank you all for supporting me on this journey. Now, go be someone’s miracle worker!
Yesterday was opening book gifts! There are actually more as some were Kindle editions. But these will keep me out of trouble for a while at least.
After the fiasco at the Phone Store, yesterday was perfect. OU Boy was home and washed my hair so I didn’t get any water in my new eye, which I am calling Drew now. Anyway, this man gives a mean head wash! I was like a cat purring it felt so good! So thanks for that!
We went out to lunch to a new pizza place. It was one of those experiences where you say, Well, we did that. Let’s not do it again. The pizza was really nice, but the televisions were all over but they were all muted so some canned music could pump over the speakers. Really ticked me off as ESPN was on.
I think someone did some grocery shopping because there is food in the refrigerator. I know it wasn’t me though as I was otherwise engaged. I was reading a book by a self published author because someone asked me to as a favor. I won’t be doing that again.
Today, all my birthday people have left. Here I am all alone, with no supervision. So I am going to pop on my headphones and listen to my fellow Georgia Girl, Karin Slaughter’s book on audio while I try really hard to paint my toenails.
I hope your May is off to a good start. I know all of you gardeners are busy doing gardening things and the farmers are seeing new life born every day now, and I am just thankful that I can just lay around the pool in the sunshine being lazy.
Because this made me feel happy. And that is good!❤
Holiday weekends are so packed that I am not posting book reviews. Just sharing things that make me happy. Also I ran into the cupboard door this morning and got a whack right under my transplant eye so Anxiety snuck in along with her nasty sister Fear. Not sure if the double vision is from that or just more cornea healing so I’m going to cover it and wait for the good doctor to tell me. In the meantime I will try and be calm and send out lots of good juju!🌸